Sunday, January 18, 2015

Why are you so tired??

Well, it's like this....I was FINE until June, 2014...and then my world changed! One week I felt like I had the flu, kind of achy and stiff....and then one morning I woke up and couldn't move! Literally could not move. Scary feeling! After numerous Dr visits, tests, scares, and more Dr visits..it was concluded that among other things I have a case of the ASS!! LOL!! Imagine that!!?? ME, of ALL people!! ASS..or AntiSynthetase Syndrome is very rare...like 2 in 1 million...Lucky ME!!This is the catalyst disease because I was the winner of the Anti Jo 1 antibody...really all I still know about this disease is that it makes everything else harder to treat. YAY ME!! Also I have Polymyositis...another rare, chronic, auto immune disease..this one attacks the muscles...makes you very weak and puts you in ALOT of pain...LOTS OF FUN!! Then to round everything out....they found Pulminary Fibrosis...or Interstitial Lung Disease...this is when scarring of your lungs occur,makes you very breathless, and it can be progressive or not...Thank the Lord that right now mine does not seem to be progressive! WHEW!!! THAT IS WHY I AM TIRED!! This has been a roller coaster of a ride....and thank God for my husband, Trip!! We are taking it one day at a time and really things have been manageable...It is hard to get used to going from being so healthy one minute to (BANG!)now I am on so many meds I have to put them in those damn little sorter things! I have been on Prednisone since June....and have blown up like a balloon! Cellcept suppresses the immune system; so along with the diseases I have, I get every thing that comes around! Flu, colds, stomach bugs..FUN TIMES! And not only do I GET them...it takes me TWICE as long to get over them! YAY ME!! This is just an explanation of what's going on...Not plea for sympathy, as I am doing fine! Everyday is a new adventure! And I don't intend on just giving in or giving up! I have AWESOME friends...a VERY supportive husband, and a terrific family! I am BLESSED!!! I usually cannot stand pictures of myself as I am sooo NOT photogenic! But here is me in June, 2014...one week before I got sick...the second one is me in December, 2014..6 months of Prednisone! AWESOME!!

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